One of our patients recently blogged about their experiences in our ED. They didn’t want to lodge a complaint, and indeed in some parts were very complimentary, but they did want us to know how it feels to be a patient. I’m very grateful that they have allowed us to reprint part of the blog here.
As you read try not to think of excuses, or justify our behaviours, but walk in their shoes.
It is worth considering how their first visit (a ‘quality’ fail at over 8 hours) was so much better than their second (a ‘quality’ tick) at 3.5 hours.
I know our team is awesome and some of this is hard to read, however, we have an opportunity to learn from this and move forwards, striving for perfection….
Two visits to A&E (Or: What it feels like to be a thing)
Visit 1
It’s 4 in the morning and I’m fighting for breath.
My heart is racing, too: 170 beats per minute, the ambulance man tells me, as he responds to my 999.
And they take me in to Edinburgh Royal Infirmary, and I’m taken straight to treatment; and while I then have to wait another eight hours in the A&E for a hospital bed, I feel cared for, and I feel safe.
4.30 am on Thursday morning feels like quite a good day to choose to be horribly ill in.
But I can’t help but notice the constant presence of people in the passage way outside my cubicle: patients of all ages just parked wherever there happens to be space.
People all sharing the same look of helpless bewilderment as they wait to be seen.
Visit 2
By the next week I’m back at home and everything seems fine.
Until 4am on Saturday night when I’m awake with the most intense and terrifying chest pain.
Pulse at 150, says the ambulance man, and we’re back on the all too familiar journey.
But something happens in the ambulance: the pain subsides, and the pulse slows down to 80.
A and E is so busy at first the ambulance man can’t even get me checked in.
I’m shivery and frightened, still, and my heart feels so desperately fragile.
"Put her there.” a nurse says, and when I open my eyes I find my chair’s been parked in a line of 4, right in the middle of everything, and nurses rushing past us as if we weren’t there.
Police officers everywhere: a palpable sense of aggression in the air.
Eventually a medical student takes me away to a cubicle, and I feel safe there. He inserts a cannula into my arm, and he takes blood, and records an ECG of my heart.
Because he’s a student, he’s immensely painstaking and full of care, and I’m so grateful to him, and then he says, “Come this way and I’ll take you to where you’ll be seen”.
And before I know what’s happening he’s taken me to a chair in the middle of all the commotion and he’s left me there.
Somewhere I’m invisible, and yet in everyone’s way, and not so far away there’s a man with a bloody bandage round his head screaming “it’s an expresso! It’s an expresso! I want my f***ing money back” at the top of his voice, over and over again, and where I am feels like such an unsafe place to be, and a tiny a bit of me wonders, Should I protest?
But I don’t have the strength, I feel so tired and so ill and so shivery and so weak and I’m so painfully aware of the fragility of my irregularly beating heart.
Just beside me there's a small group of medical students, and they're saying "there's a head injury in cubicle 12. Shall we go and check it out?" and they've gone, because although they're just next to me it's as if I wasn't there.
And I curl up inside. There’s a kind of space where it all seems to be happening to someone else, and it feels safer there. And so I give up on myself. I give myself up to being abandoned.
Looking back, it’s obvious that what happened was that as my pulse slowed and my pain subsided in the ambulance, so I, too, dropped down all the urgent categories until I ended up at the back of the queue and the bottom of the heap.
And I won’t complain about this. It’s what the staff have to do, they have to prioritise, and they do it with expertise and skill.
But I would say of those of us who are medically uninteresting, those of us who aren’t urgent: we are still human beings who suffer.
Suffer thirst and pain and cold and fear and bewilderment and above all, as we are left helpless in our chairs, suffer from a sense of abandonment.
I was there for over an hour, I think, in that dreadful place.
And then I was led to a trolley in a cubicle and the trolley had a clean sheet on it, and I could lie down. And I felt as if in heaven.
And I was seen, and my chest was x rayed, and decisions were taken.
Later, I was moved out in the centre of the passageway again, but it didn’t feel so bad, because I knew what was happening.
My trolley was parked in front of a place where admission forms were stored, and nurses had to continually lean over me to get them. Lean over me as if I wasn’t there.
I said to one, quite gently, “This is terrible.”
“Yes,” she agreed sadly “It’s so bad for everyone”.